The Frozen Light Podcast
We started a podcast to stay in touch with the PMLD community during the time first covid pandemic, to hear peoples experiences and record this moment in history.
You can listen to the podcast on Spotify, Apple Podcasts, Google Play, many more providers…. and even on this website! See show notes below with further info on each episode.
Episode Notes
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Podcast Special- Chatting Changing Places with Zack Kerr
Zack has been campaigning for more Changing Places at service stations since 2017. In July 2020 it was announced that Changing Places will be compulsory for new buildings in England from 2021. Follow Zac on twitter @zackyboy14
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Epilogue- Season One round up with Amber and Lucy
Amber and Lucy chat about what they’ve learnt through hosting The Frozen Light Podcast. By looking back and reflecting on previous episodes they visit some highlights and moments that have stayed with them.
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Episode 13- Interview with BDCPS
Amber and Lucy catch up with long time Frozen Light audience members, Bedford & District Cerebral Palsy Society. We chat to Rose and Ellie about how they have been supporting BDCPS families through lockdown, and preparing for their Summer play scheme. BDCPS website: https://bdcps.charity
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Episode 12- Interview with Christine Singleton, Skiggle
Skiggle is a non profit online community for individuals, carers and families seeking care-based essential items. Amber and Lucy chat to Christine Singleton about Skiggle, the environment, life in lockdown and hopes for the future. Skiggle website: https://www.skiggle.co.uk
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Episode 11- Interview with Reflect PMLD
Reflect PMLD is a specialist daytime support service for adults with profound and multiple learning disabilities. We speak to Cath, Mark and Steve about techniques that are embedded into the organisation and how they’ve adapted the services during Covid-19. Reflect PMLD website: https://www.reflectfutures.co.uk
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Episode 10- Interview with Carole Kelly, Jolly Josh
Amber and Lucy speak to Carole Kelly from Jolly Josh which aims to relieve the needs of people with complex needs and PMLD, their families and carers within Rochdale. We hear about the lockdown photography project with Jolly Josh families. Jolly Josh website: https://www.jollyjosh.co.uk
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Episode 9- Interview with Stephanie Tyrrell, Sense
Lucy and Amber talk to Stephanie Tyrrell, National Arts Manager at Sense. We talk about Sense’s multi-purpose community space TouchBase Pears in Birmingham, and how the charity is adapting its arts provision for the people they support through lockdown and shielding. Sense Arts manifesto here.
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Episode 8- Interview with Sarah and Dan Walker, family carer
We chat creativity in lockdown with Sarah Walker who is currently shielding with her brother Dan. We hear about her experiences of caring for her brothers Dan and Sam, and the importance of access and understanding that society still needs to develop. Featuring Dan on the Dream Drum and Keyboard.
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Episode 7- Interview with Stephen Kingdom, DCP
Amber and Lucy speak to Stephen Kingdom from Disabled Children’s Partnership in regards to their recent survey of over 4,000 families to see how they’ve been impacted during lockdown. DCP website: https://disabledchildrenspartnership.org.uk
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Episode 6- Interview with Thomas and Lucy, Riding on a Star
Frozen Light chat to Thomas and Lucy from Riding on a Star about how they’ve been getting on in lockdown. We chat bubbles, shielding, and the benefits of eye gaze technology. Riding On a Star on facebook @ridingastar
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Episode 5- Interview with Dr Nicola Grove, Surviving Through Story
Frozen Light speak to Dr Nicola Grove, who along with Flo Hopwood and Katrina Arab, is the founder of Surviving Through Story. We speak about story sharing, its inherent value and the power of first hand stories. Surviving through Story website: https://www.survivingthroughstory.com
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Episode 4- Interview with Rachel Wright, Born at the Right Time
Frozen Light speak to Rachel Wright, founder of Born at the Right Time. We chat about family life in lockdown, and #bridgingthegap between families of children with complex needs and those who support them. Born at the Right Time website: https://www.bornattherighttime.com
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Episode 3- Interview with Hugh and Emma
In this episode Lucy and Amber speak to Emma and Hugh who are currently shielding with their family. We chat dogs, music, and the future! Hugh’s Facebook @happylittlehugh
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Episode 2- Interview with Joanna Grace of The Sensory Projects
In this episode Lucy and Amber speak to Joanna Grace- a sensory engagement and inclusion specialist, author, trainer, TEDx speaker and founder of The Sensory Projects. We discuss her Covid-19 resource page and the Supporting people with profound and multiple learning disabilities Core and Essential Service Standards.
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Episode 1- Interview with Sharon Slade, family carer and Frozen Light trustee
Lucy and Amber first met Sharon in 2015 when Sharon and her daughter came to see Frozen Light’s production of The Forest. Sharon is now a trustee in the role of Audience Advocate for the charity. In this episode they discuss Sharon’s experience of lockdown as a family carer.
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Intro Episode- Prologue
Welcome to The Frozen Light Podcast! Frozen Light create multi-sensory theatre for audiences with profound and multiple learning disabilities (PMLD). In this introduction Co-Artistic Directors, Lucy and Amber, discuss the reasons behind starting this podcast.
Episode Transcripts
Episode 1- Interview with Sharon Slade, family carer and Frozen Light trustee
Episode 2- Interview with Joanna Grace of The Sensory Projects
Episode 3- Interview with Hugh and Emma
Episode 4- Interview with Rachel Wright, Born at the Right Time
Episode 5- Interview with Dr Nicola Grove, Surviving Through Story
Episode 6- Interview with Thomas and Lucy, Riding on a Star
Episode 7- Interview with Stephen Kingdom, DCP
Episode 8- Interview with Sarah and Dan Walker, family carer
Episode 9- Interview with Stephanie Tyrrell, Sense
Episode 10- Interview with Carole Kelly, Jolly Josh
Episode 11- Interview with Reflect PMLD
Episode 12- Interview with Christine Singleton, Skiggle
Episode 13- Interview with BDCPS